http://solvecfs.org/public-release-of-t ... bruary-10/
The Institute of Medicine’s Committee on the Diagnostic Criteria for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome will hold a public release event for its consensus report on February 10th, 2015 from 11:00 am-12:00 pm EST at the Keck Center of the National Academies in Washington, D.C. (500 Fifth Street NW, Washington, DC).
Interested individuals will be able to attend the public release event in person or virtually via webcast. Persons who plan on attending the meeting in person are requested to register in advance prior to February 5, 2015. Registration for persons attending the meeting in person will be open until seating capacity of the conference room is reached. All participants may participate via webcast. A link for the webcast will be available on the public release webpage shortly before the event begins at 11:00 a.m. on February 10, 2015.
A PDF of the report will be available for free download on the event webpage beginning at 11 AM.
For more details of the event please visit the public release webpage
http://www.iom.edu/Activities/Disease/D ... EB-10.aspx
Vel, da er rapporten offentliggjort.
Utvalget foreslår å endre navnet på sykdommen fra ME / CFS til SEID ( systemic exertion intolerance disease) :
Kriteriene for denne diagnosen foreslår de skal være følgende :To replace ME/CFS, the committee proposes
the name systemic exertion intolerance disease, or
SEID. This name captures a central characteristic
of the disease: the fact that exertion of any sort—
physical, cognitive, or emotional—can adversely
affect patients in many organ systems and in many
aspects of their lives. The committee believes systemic
exertion intolerance disease appropriately
captures the complexity and severity of the illness.
Therefore, it recommends that patients who meet
the proposed diagnostic criteria, whether or not
they have already been diagnosed with ME/CFS,
should henceforth be diagnosed with SEID
Linker :Diagnosis requires that the patient have the following three symptoms:
1. A substantial reduction or impairment in the ability to engage in preillness
levels of occupational, educational, social, or personal activities,
that persists for more than 6 months and is accompanied by fatigue,
which is often profound, is of new or definite onset (not lifelong), is not
the result of ongoing excessive exertion, and is not substantially alleviated
by rest, and
2. Post-exertional malaise,* and
3. Unrefreshing sleep*
At least one of the two following manifestations is also required:
1. Cognitive impairment* or
2. Orthostatic intolerance
http://www.iom.edu/~/media/Files/Report ... tBrief.pdf
http://www.iom.edu/~/media/Files/Report ... rpoint.pdf
http://www.iom.edu/~/media/Files/Report ... yFacts.pdf